유럽과 캐나다의 제1형 기면병(NT1) 성인 치료 사용 연구

Narcolepsy is a sleep disorder that disrupts a person's regular sleep-wake cycle. It causes extreme sleepiness during the day (called excessive daytime sleepiness \[EDS\]), where a person may fall asleep without warning. Narcolepsy Type 1 (NT1) is a form of the condition in which people also have sudden, unexpected muscle weakness while staying conscious (called cataplexy). The usual care for NT1 focuses on managing symptoms and improving the sleep and wake cycle. It pays special attention to daytime sleepiness. Information on treatment use and related effects in adults with NT1 is limited. This study aims to collect such information and help fill this gap. The main aim of this study is to better understand how adults with NT1 are treated in real life, why treatment changes happen and how different treatment choices (both medicines and non-medicine strategies) affect symptoms, cataplexy and quality of life over time. The study also aims to learn more about adults with NT1, how they are diagnosed, how their treatment works, and how often they need medical care. It will also record how satisfied they are with treatment and how NT1 affects their symptoms, daily life, and quality of life over time.